Charlie Gard’s parents are canceling their request to have their loved son die in the commodity in their own home.
“We promised Charlie every day we would take him home. It seems really upsetting, after everything we’ve been through, to deny us this,” Connie Yates stated Tuesday, asking for permission for Charlie to spent his last days in a nursing home before the ventilator he uses is turned off and he dies.
According to Attorney Grant Armstrong who stated for London’s High Court, many employees from Great Ormond Street Hospital will volunteer their free days to deliver care for the baby.
“We believe we are able to put in place a plan of nursing staff, funded privately. Several nurses from Great Ormond Street have volunteered to assist. May I pay tribute to these nurses,” he said.
A medical equipment company proposed to donate a ventilator for Charlie to the family, and a doctor volunteered to supervise the treatment.
The hospital refuses to fulfill the parents’ wish their son to die in the tranquility of his home, because as stated the ventilator is too big to be fitted through their home’s door.
And that isn’t the only problem. The equipment is inflexible and hard to move, and in order to get it into the house, Charlie must be taken off from his ventilator.
Anyhow, the Attorney stated that there is a possibility to move the infant to the nursing home.
“In itself, transfer should not be a difficult issue,” he said, adding that if the baby’s breathing tube became displaced, it could easily be put back.
According to Judge Nicholas Francis cure for sensitive issues like this is “for mediation,” but both the hospital and parents think this very abstract way of coping.
During the court hearing the two sides shared angry arguments, when Armstrong cracked, “Give them some peace!” Katie Gollop, the lawyer who represents the hospital.
Charlie has a very rare disease named mitochondrial DNA depletion syndrome, that causes brain damage and also no possibility of recovery.
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